Have You Ever Heard of DIPG?


Neither had I until it came for my daughter. It is the monster under the bed that you always said didn’t exist and there is nothing you can do to protect your child from it. Here are a few facts about the monster, diffuse intrinsic pontine glioma.


       There are 250-300 cases diagnosed each year in the United States.


       The cause is unknown.


       It has been deemed too “rare” for pharmaceutical companies to find it profitable enough to research.


       There have been no new advancements in treatment for well over 30 years. 


       Over 97% of children diagnosed with this horrible disease will die within 3 years.

       Symptoms include loss of balance, dizziness, double vision, difficulty swallowing, vomiting, weakness on one     

       side of the body, unusual sleepiness and loss of energy.


       This is a highly aggressive brainstem glioma with an average life expectancy of 9 months.

       Whitley lived for 14 months.


       The brainstem controls breathing, heart rate and the nerves and muscles used for hearing, seeing, walking, 

       talking and eating. I watched helplessly as all of these functions were brutally taken from Whitley.

       As the child loses their physical abilities their cognitive abilities are spared, meaning they are fully aware of what  

       is happening to them. They are trapped in a body that will no longer work.


       Brain tumors are the most common cause of cancer death among children.


       All childhood cancer research receives only 4% of government funding.

       It has been suggested and many doctors believe that a cure for DIPG would result in a cure for every other kind of



       This is the beast of all beasts. We need your help so that no other child will have to endure what Whitley went


        If you would like to help us find a cure, please donate now!